Tanya Collin-Histed became involved in the Gaucher world in 1996 when her daughter Maddie was diagnosed with Type 3 Gaucher disease. A year later she became a volunteer for the Gauchers Association and started to support patients and their families with Type II and III Gaucher Disease through family conferences, information booklets and proving friendship and emotional support.
In 2001 Tanya received the Alan Gordon Memorial Award in recognition for her work with Neuronopathic Gaucher disease and her support to families.
In 2003 Tanya became the national development manager for the UK Niemann-Pick Disease Group, the charities first ever employee. However, in 2005 she took up the post of Executive Director of the Gauchers Association UK and was in this post, as Chief Executive until July this year when she resigned to take on the role of Chief Executive Officer for the European Gaucher Alliance (EGA) on a full-time basis.
Tanya has been the part time CEO of the EGA since 2008 and underpins all of the activities of the EGA from their UK office. Tanya’s main responsibilities within the EGA are supporting patients globally to access treatment through compassionate programmes in partnership with Pharmaceutical Companies and supporting evolving patient’s groups in countries across the globe.