Care Beyond Diagnosis
Care Beyond Diagnosis (CBD) is a 501c3 non-profit organization based in the US created to support patients, families and communities after a Rare Disorder diagnosis. CBD has a primary focus on countries in the developing world and operates through a “fill the gap” strategy by partnering with established Patient Advocacy Organizations, Doctors and Industry Partners. Once a patient has been diagnosed and CBD has been contacted, we look at all the needs of the patient and their family. Through grants and donations, CBD provides assistance in many ways, ranging from quality of life enhancements, transportation to treatment, dietary requirements, necessary home-modifications and to family counseling. CBD also holds medical education events in the developing world in order to empower clinicians to diagnose new patients. In order to maximize CBD’s effectiveness in the Rare Disease Community, we ask clinicians, Patient Groups and families reach out to us to understand if CBD can help.