Saturday Programme and Presentations

08:30 – 10:30

Session 10: Improved quality of life

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11:00 – 12:30

Session 11: Patient organisations: a panel discussion

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12:30 – 13:00

Conference closing

  • Benjamin Djoudalbaye, African Union Commission, Ethiopia
  • Kelly du Plessis, Rare Diseases South Africa, South Africa
  • John Forman, ICORD, New Zealand
  • Manuel Posada, ICORD, Spain

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14:00 – 17:00

Capacity Building Workshop for Health care Based NPOS – a RDI / RDSA initiative

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Sponsored by:

Sanofi Genzyme CSL Behring Equity Pharmaceuticals Marken PerkinElmer Pfizer sobi Audentes iConnect Novartis springernature Celgene Karolinska