European Organisation for Rare Diseases


The European Organisation for Rare Diseases (EURORDIS) is a non-governmental patient-driven alliance of patient organisations representing over 700 rare disease patient organisations in more than 60 countries.

EURORDIS represents the voice of an estimated 30 million people living with a rare diseases throughout Europe.

EURORDIS seeks to improve the quality of life of people living with rare diseases in Europe through advocacy at the European level, support for research and medicines development, facilitating networking amongst patient groups, raising awareness, and many other actions designed to reduce the impact of rare diseases on the lives of patients and family.

EURORDIS Mission: to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and – directly or indirectly – to fight against the impact of rare diseases on their lives.

Follow EURORDIS on Twitter here and take a look at the Facebook page.

For more information on EURORDIS, please visit the website.